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Gonna be gone for a while

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Brucey
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Re: Gonna be gone for a while

Post by Brucey » Sun Apr 22, 2018 9:56 pm

me too.
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hornhospital
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Re: Gonna be gone for a while

Post by hornhospital » Mon May 07, 2018 5:35 pm

Had the follow-up with the doctor after a biopsy a week ago. The cancer is still there. I start another cycle of 6 chemo treatments, one a week for 6 weeks, next Monday, then another biopsy at 8 weeks. They didn't do more resections to remove the cancer, because it's in the lining. If the chemo doesn't work, then next step is to remove the bladder.

They added Interferon to the chemo mix. As soon as I heard "Interferon" I knew the cost was going to go through the roof. It did. Co-pay went from $46.53 per treatment, to $346.53 per treatment. The Interferon added to the treatment is less than 1/8th ounce. Yup, the stuff is expensive!$2400 an ounce. It must be made from rust-free E9 body panels....
Ken Kanne
'84 633CSi "Sylvia"; '85 635CSi "Katja";'87 325is "Odette"; '93 325is "Elvira"; '95 M3 "Ashlyn"

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WelshBentleyBoy
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Re: Gonna be gone for a while

Post by WelshBentleyBoy » Mon May 07, 2018 6:48 pm

Keep hanging on in there. I have had my prostate removed in 2002, Bowel tumour removed in 2011, liver tumour in 2012 and I am now 5 years clear and still driving my cars! My advice would be always find the best treatment you can afford. As in all areas there are some who are better than others. When I had my liver done it was state of the art surgery. My local man had done 5 or 6. The guy who did it had done 1100!!
My advice, take a second expert opinion before letting them remove the bladder. I am not a medical man but I have got the T shirt!
As a friend of mine used to say to women at parties "I am not a gynaecologist but I'll have a good look at it for you!"
Paul
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baders
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Re: Gonna be gone for a while

Post by baders » Wed May 09, 2018 3:17 am

Wishing you the very best Ken. As I mentioned before, my father had it. The series of treatments appear to have killed it and he won't have to have his bladder removed.
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hornhospital
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Re: Gonna be gone for a while

Post by hornhospital » Wed May 09, 2018 5:58 am

That's exactly the result I'm hoping for. It's good to hear of someone that had a successful outcome. Thank you.
Ken Kanne
'84 633CSi "Sylvia"; '85 635CSi "Katja";'87 325is "Odette"; '93 325is "Elvira"; '95 M3 "Ashlyn"

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raykoke
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Re: Gonna be gone for a while

Post by raykoke » Sat May 12, 2018 2:58 pm

hornhospital wrote:
Wed May 09, 2018 5:58 am
That's exactly the result I'm hoping for. It's good to hear of someone that had a successful outcome. Thank you.
You do that too!

:P

:)

Best,

Ray
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Ralph in Socal
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Re: Gonna be gone for a while

Post by Ralph in Socal » Sat May 12, 2018 8:07 pm

hornhospital wrote:
Wed May 09, 2018 5:58 am
That's exactly the result I'm hoping for. It's good to hear of someone that had a successful outcome. Thank you.
Vintage next year Ken. I want to do it and see you there as well. YOU WILL DO IT!!

Ralph
There is a very fine line between "Hobby" and Mental Illness.

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hornhospital
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Re: Gonna be gone for a while

Post by hornhospital » Fri Jun 08, 2018 9:43 pm

Just had the second treatment of the second round (6 in 6 weeks, this was number 2). I tolerated it better than a week ago. Side effects of the first treatment hit me a few days ago. "Flu-like symptoms". Yeah, I'll say! Hey, if it kills the cancer, that's a small price to pay.

It's a little awkward to address the GoFundMe that Nikki set up, but a big thank you to her for that and to all that have donated toward my treatment. Insurance companies are really peculiar when it comes to cancer treatments. I have Blue Cross/Blue Shield. Great insurance, right? Except they don't pay for some of the most effective chemotherapy treatments. Go figure. Sad thing is I paid for a separate cancer policy for 28 years while working as a machinist that would have covered all of it, but when that job went away in 2009 I had to chose between BCBS or the cancer policy. I couldn't afford both. Now it's biting me in the butt....or bladder.
Ken Kanne
'84 633CSi "Sylvia"; '85 635CSi "Katja";'87 325is "Odette"; '93 325is "Elvira"; '95 M3 "Ashlyn"

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Re: Gonna be gone for a while

Post by baders » Tue Jun 12, 2018 8:13 am

Hang in there mate. My father goes in for testing (for recurrence) tomorrow so hoping it is all gone. One very important thing to note here is that they caught this early. They caught it early because my father happened to mention to my mother that he saw a small amount of blood in his urine. Mum made him go for a check up. He never would have done it if she had not nagged. See blood gents, GET IT CHECKED !
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hornhospital
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Re: Gonna be gone for a while

Post by hornhospital » Sat Jul 07, 2018 6:54 pm

I hope your father got good news, Baders!

I had my 5th of 6 treatments yesterday. Next Friday I get to "ring the bell" at the infusion center, signifying I had my last chemo treatment. Then two weeks after that I'll have another biopsy to see if the chemo has worked /is working.

Thank you to any of you that gave to the GoFundMe campaign that Nikki set up. It really helped us financially and emotionally. It really bothers me to ask for help, but without it I couldn't have the chemo. I am awed by the generosity of people I've never even met.
Ken Kanne
'84 633CSi "Sylvia"; '85 635CSi "Katja";'87 325is "Odette"; '93 325is "Elvira"; '95 M3 "Ashlyn"

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Update....not good news

Post by hornhospital » Wed Aug 29, 2018 2:35 am

I got some really not good news today from the biopsy two weeks ago.
Dr. Keel (urologist) says my bladder has to come out. Cancer continues to grow. Starting to invade the muscle around the bladder. Scheduled for surgery Oct. 22 at 7:30 in the morning. I have to be there at 5:30. Argh. That was the first open date he had. I hope it's not waiting too long. They were hoping the chemo would work. The type of cancer I have is resistant to chemo, but they tried the two kinds of chemicals that work the best and they didn't have any effect. The doctor drew me a chart of the progression of treatment. We ran out of options after the last resection/biopsy. It's gone from low grade to high grade, fast growing. Fortunately not considered aggressive....yet.
Sorry to burden you guys with this. I had to tell somebody. Pretty down right now. This forum, and being a moderator on Bimmerfest keeps my mind off it. Thanks for listening.
Ken Kanne
'84 633CSi "Sylvia"; '85 635CSi "Katja";'87 325is "Odette"; '93 325is "Elvira"; '95 M3 "Ashlyn"

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Re: Gonna be gone for a while

Post by GazM3 » Wed Aug 29, 2018 12:43 pm

Geez Ken. My thoughts are with you. Cancer is a bitch. I saw new posts on this thread and didn’t want to click on for a while. Stay positive as you can. Often sickness is more difficult for the ones around you. Hope the news is better next time.
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sharkfan
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Re: Gonna be gone for a while

Post by sharkfan » Wed Aug 29, 2018 7:58 pm

We're all on an unknown length bit of string so just you make the absolute most of the days you have right in front of You.

Good luck Ken.
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Re: Gonna be gone for a while

Post by NigelC » Wed Aug 29, 2018 10:14 pm

Dear Ken, my very best wishes to you for a positive outcome after your surgery. I have been following your thread since January with a lot of sympathy and understanding as at that same time I was diagnosed with aggressive terminal cancer caused by brief exposure to asbestos 36 years ago. Two separate types of chemo wore me down but could not stop it.I am now starting Immunitherapy which is not supported by our NHS (£8k per session!) first results promising. All the way through this I have maintained a 'very positive attitude' which I am quite sure makes a big difference. The positive brain and body are very powerful tools to help fight the cancer. -Plus the distraction of bigcoupe and our lovely sharks!
So from someone who knows what you are going through be mentally strong and positive -even when you don't feel like it!
yours sincerely, NigelC

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Re: Gonna be gone for a while

Post by Pod » Fri Aug 31, 2018 7:53 am

My thoughts are with you, Ken (and also Nigel). Hope everything is resolved when you have the surgery.

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Re: Gonna be gone for a while

Post by hornhospital » Sat Oct 20, 2018 2:26 pm

Lots happening here. We are moving to my parents house before my surgery in two days (Monday, 22 Oct.). I inherited the house when my mom passed in 2012. It is bigger and in MUCH better condition than our house. I'll need the extra room around the bed for home health access and rehab. I didn't want to move (I'm one of those stick-in-the-mud "I don't like changes"curmudgeons), but it makes sense.

One of the changes is I really WILL be gone for a while. 5-7 days in the hospital, and from past experience there, it's like being under a Faraday shield. Practically zero cell signal, so I may not even be able to browse/post from my phone. So when I log off Sunday evening some time, I won't be back around for a week or so.

Thanks for the prayers and well wishes.
Ken Kanne
'84 633CSi "Sylvia"; '85 635CSi "Katja";'87 325is "Odette"; '93 325is "Elvira"; '95 M3 "Ashlyn"

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hornhospital
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Re: Gonna be gone for a while

Post by hornhospital » Wed Oct 31, 2018 1:38 am

Survived the surgery, came home Thursday night, a couple days ahead of schedule . Got back from the follow-up appointment with Dr. Keel today about 1:45. Good report. Pathologist said they got all the cancer, including the prostate cancer they didn't know was there. No cancer in the lymph glands, so I won't need chemo or radiation. I go back next Tuesday to have the staples removed. Honestly it's my butt that hurts worse than any of the surgery sites. Fanny fatigue is killing me!
Ken Kanne
'84 633CSi "Sylvia"; '85 635CSi "Katja";'87 325is "Odette"; '93 325is "Elvira"; '95 M3 "Ashlyn"

Pod
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Re: Gonna be gone for a while

Post by Pod » Wed Oct 31, 2018 9:54 am

Great news, Ken!

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Re: Gonna be gone for a while

Post by baders » Thu Nov 01, 2018 2:11 am

Good news Ken, glad the surgery went well. Also thinking of you too Nigel, best wishes to you mate from Down Under. My father had his check up that I wrote about and no sign of recurrence fortunately.
1986 635csi LOCUTUS
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Re: Gonna be gone for a while

Post by songzunhuang » Thu Nov 01, 2018 5:29 am

Hooray! Best news I've heard in a while.
I'm looking forward to shooting the breeze about e24's with you in the future (and any other topics you want).
-----
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Re: Gonna be gone for a while

Post by NigelC » Sat Nov 03, 2018 11:47 am

So pleased to hear your news, Ken, after your successful surgery and follow-up saying that they have got it all it sounds
like you have turned the corner at last - Great! and no need for any more chemo, -that's got to be good!
Wishing you a speedy recovery, regards, Nigel.
ps thank you Baders for you kind wishes, I think my new treatment is managing to reduce the cancer.

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Re: Gonna be gone for a while

Post by sansouci » Sat Nov 03, 2018 4:58 pm

Nigel,
Best wishes and if there is anything on this side of the pond that we can do, just ask.
--Ken
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Re: Gonna be gone for a while

Post by slofut » Sun Nov 04, 2018 1:44 am

Hey Ken and Nigel,
Haven't been keeping up and haven't been on the forum in a while so I didn't know what you guys were dealing with. My brother (50yrs old) just got done with stage 4 colon cancer, all is good, he hardly missed much work and is determined not to let it slow him down. My heart is with you guys and I wish you all the best in recovery and getting back to normal and back to driving your e24's!
Much love,
Bill
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hornhospital
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Re: Gonna be gone for a while

Post by hornhospital » Mon Nov 05, 2018 10:51 pm

Bit of a setback.....threw a blood clot and have an infection. Back in the hospital for a few days. I thought I was doing pretty well, too. Just another challenge.
Ken Kanne
'84 633CSi "Sylvia"; '85 635CSi "Katja";'87 325is "Odette"; '93 325is "Elvira"; '95 M3 "Ashlyn"

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