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Gonna be gone for a while

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Brucey
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Re: Gonna be gone for a while

Post by Brucey » Sun Apr 22, 2018 9:56 pm

me too.
~~~~~~~~~~~~Brucey~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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hornhospital
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Re: Gonna be gone for a while

Post by hornhospital » Mon May 07, 2018 5:35 pm

Had the follow-up with the doctor after a biopsy a week ago. The cancer is still there. I start another cycle of 6 chemo treatments, one a week for 6 weeks, next Monday, then another biopsy at 8 weeks. They didn't do more resections to remove the cancer, because it's in the lining. If the chemo doesn't work, then next step is to remove the bladder.

They added Interferon to the chemo mix. As soon as I heard "Interferon" I knew the cost was going to go through the roof. It did. Co-pay went from $46.53 per treatment, to $346.53 per treatment. The Interferon added to the treatment is less than 1/8th ounce. Yup, the stuff is expensive!$2400 an ounce. It must be made from rust-free E9 body panels....
Ken Kanne
'84 633CSi "Sylvia"; '85 635CSi "Katja";'87 325is "Odette"; '93 325is "Elvira"; '95 M3 "Ashlyn"

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WelshBentleyBoy
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Re: Gonna be gone for a while

Post by WelshBentleyBoy » Mon May 07, 2018 6:48 pm

Keep hanging on in there. I have had my prostate removed in 2002, Bowel tumour removed in 2011, liver tumour in 2012 and I am now 5 years clear and still driving my cars! My advice would be always find the best treatment you can afford. As in all areas there are some who are better than others. When I had my liver done it was state of the art surgery. My local man had done 5 or 6. The guy who did it had done 1100!!
My advice, take a second expert opinion before letting them remove the bladder. I am not a medical man but I have got the T shirt!
As a friend of mine used to say to women at parties "I am not a gynaecologist but I'll have a good look at it for you!"
Paul
WelshBentleyBoy

baders
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Re: Gonna be gone for a while

Post by baders » Wed May 09, 2018 3:17 am

Wishing you the very best Ken. As I mentioned before, my father had it. The series of treatments appear to have killed it and he won't have to have his bladder removed.
1986 635csi LOCUTUS
Arktis Blau Metallic / Pearl Beige
S38B36/Close ratio dogleg 5sp
Perth Australia.

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hornhospital
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Re: Gonna be gone for a while

Post by hornhospital » Wed May 09, 2018 5:58 am

That's exactly the result I'm hoping for. It's good to hear of someone that had a successful outcome. Thank you.
Ken Kanne
'84 633CSi "Sylvia"; '85 635CSi "Katja";'87 325is "Odette"; '93 325is "Elvira"; '95 M3 "Ashlyn"

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raykoke
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Re: Gonna be gone for a while

Post by raykoke » Sat May 12, 2018 2:58 pm

hornhospital wrote:
Wed May 09, 2018 5:58 am
That's exactly the result I'm hoping for. It's good to hear of someone that had a successful outcome. Thank you.
You do that too!

:P

:)

Best,

Ray
'85 ///M635

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Ralph in Socal
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Re: Gonna be gone for a while

Post by Ralph in Socal » Sat May 12, 2018 8:07 pm

hornhospital wrote:
Wed May 09, 2018 5:58 am
That's exactly the result I'm hoping for. It's good to hear of someone that had a successful outcome. Thank you.
Vintage next year Ken. I want to do it and see you there as well. YOU WILL DO IT!!

Ralph
There is a very fine line between "Hobby" and Mental Illness.

85 635csi Zinno Auto
84 528i Euro
83 635 Euro Arktik
81 528i Kastanien 5-speed
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hornhospital
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Re: Gonna be gone for a while

Post by hornhospital » Fri Jun 08, 2018 9:43 pm

Just had the second treatment of the second round (6 in 6 weeks, this was number 2). I tolerated it better than a week ago. Side effects of the first treatment hit me a few days ago. "Flu-like symptoms". Yeah, I'll say! Hey, if it kills the cancer, that's a small price to pay.

It's a little awkward to address the GoFundMe that Nikki set up, but a big thank you to her for that and to all that have donated toward my treatment. Insurance companies are really peculiar when it comes to cancer treatments. I have Blue Cross/Blue Shield. Great insurance, right? Except they don't pay for some of the most effective chemotherapy treatments. Go figure. Sad thing is I paid for a separate cancer policy for 28 years while working as a machinist that would have covered all of it, but when that job went away in 2009 I had to chose between BCBS or the cancer policy. I couldn't afford both. Now it's biting me in the butt....or bladder.
Ken Kanne
'84 633CSi "Sylvia"; '85 635CSi "Katja";'87 325is "Odette"; '93 325is "Elvira"; '95 M3 "Ashlyn"

baders
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Re: Gonna be gone for a while

Post by baders » Tue Jun 12, 2018 8:13 am

Hang in there mate. My father goes in for testing (for recurrence) tomorrow so hoping it is all gone. One very important thing to note here is that they caught this early. They caught it early because my father happened to mention to my mother that he saw a small amount of blood in his urine. Mum made him go for a check up. He never would have done it if she had not nagged. See blood gents, GET IT CHECKED !
1986 635csi LOCUTUS
Arktis Blau Metallic / Pearl Beige
S38B36/Close ratio dogleg 5sp
Perth Australia.

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hornhospital
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Re: Gonna be gone for a while

Post by hornhospital » Sat Jul 07, 2018 6:54 pm

I hope your father got good news, Baders!

I had my 5th of 6 treatments yesterday. Next Friday I get to "ring the bell" at the infusion center, signifying I had my last chemo treatment. Then two weeks after that I'll have another biopsy to see if the chemo has worked /is working.

Thank you to any of you that gave to the GoFundMe campaign that Nikki set up. It really helped us financially and emotionally. It really bothers me to ask for help, but without it I couldn't have the chemo. I am awed by the generosity of people I've never even met.
Ken Kanne
'84 633CSi "Sylvia"; '85 635CSi "Katja";'87 325is "Odette"; '93 325is "Elvira"; '95 M3 "Ashlyn"

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